Thursday, July 17, 2014

the greatest band on earth

Tonight I was rocking Parker to bed. It's one of my very favorite moments of the day. It's always the same; soothing and comforting. A chance for quiet and calm. Where breathing goes from restless and scattered to deep and calming. I think about the day and somehow the hard parts don't seem nearly as hard. And the good parts, they rise to the top like bubbles. As they float away I can't always comprehend that these little beings belong to me. Sometimes I don't feel good enough or perfect enough to be their mom. But then I realize it's all by design and this is exactly how life is supposed to go down. I was chosen to be this lucky.

Imperfect me
Imperfect them
We are all imperfect now and then

Tonight Grey tried to join us on our little tiny glider and he kept leaking off. He looked around the room with concentration and amusement in his eyes- in a way I could tell that he was formulating a plan. He pushed a side table to Parker's crib and climbed in so he could have a place to sit. I smiled and saw the outline of Parker's profile in the faint golden glow of light leaking in from the hall.  And while we were there doing our evening dance- I could already miss it. I strangely and achingly missed this moment. This time. This life with two so dependent on my at times it makes me overflow with crazy.

What a gift. Life. If you don't believe me, ask someone who is dying. They'll tell you what's up.

I can count the number of times Grey has sought interaction with other kids on one hand. And I'd even have a few fingers left over. Last week-while phone free and connection full -we had a group of friends over. At one point everyone congregated upstairs and started playing "music". That term MUST be quoted. It sounded like screaming and singing and the banging of the drums- OH MY, I cannot forget the pounding horrible banging of the drums. At one point my friend said- "I hope that's not too loud for Grey. Do you think he's okay?" So I peeked upstairs and my jaw fell right off. Grey was actually standing in the middle of it all, jumping and flappy and happy and shaking some maracas. And almost every single night since then he takes Michael or I to the drum set - and says "Help me". He wants them back where they were when our friends were over. He wants to recreate that moment again and again. Like me, he loved it so much he probably already missed it while it was happening.

And today he had his wish. And I went upstairs to check on him and saw this. And my eyes found it so unbelievable it could barely tell my brain what was going on.

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All the boys playing together. MY BOYS playing together with all the boys. Did this really happen? In the moment it was just so fast and sweet and then life happened and I had to do something or go somewhere but now I sit and relish this picture and this moment and this memory and this life and these boys all playing together. I think I may just burst.

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And today they made the prettiest music I think I have ever heard.

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Doodle and his bestie Liam swimming today.

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And the afternoon ended perfectly and unexpectedly when this drove by while we were walking the last of our friends out.  (Frank had to take off today).

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Going, going, gone. The day and this life. 

I'm so glad I get to spend it with them and with you.


Come check out my words on my favorite topic- Everyday Adventure at Mamalode today!


  1. this is so beautiful!!! thank you for giving some beautiful perspective! my daughter also has special needs, and your words speak straight to my heart.

  2. Lisa from Tennessee (and just a little bit Ohio)July 17, 2014 at 7:24 AM

    I am so thrilled for you! I can't even imagine how happy you were/are, becuase I'm so incredibly happy for you that I'm leaking tears myself, and I'm thousands of miles away. Much love to you all.

  3. That picture of Doodle and his stunt double was too much! I love that Grey was rockin out with the band.
    I used to rock Jace in our glider, until not even a year ago. Then I think we both got too big. For the sake of more real estate, I was going to put the chair in the garage sale this year. My 5 year old boy cried, actual tears. He said - Mom! There are so many memories in this chair. We can't sell it! Needless to say, we still have the glider in the corner of the family room <3
    Love & happiness to you, sweet Momma! xoxo Jen

  4. I especially like that Parker was holding a tablet of Mad Libs. My kind of kid! This looks lovely (loud) and fun. xoxo

  5. So exciting! I LOVE these pictures and especially the one of Parker hugging his buddy. Maybe Grey is destined to be a happy musician?

  6. The love Parker is expressing to Liam is AMAZING. An non prompted emotional outpouring; AMAZING I say.

  7. I love reading your posts. It brings a smile to my face and joy to my heart. Bless you and your beautiful family.

  8. Love this post! I am a teacher and know how significant this interactive play was! I pray it continues. And I am so thrilled for you! And the boys, of course. But as a mom with a child that took 17 to overcome Selctive Mutism, I feel your joy! :)