Tuesday, March 12, 2013

Change

I always wonder why birds choose to stay in the same place when they can fly anywhere on the earth, then I ask myself the same question. 
Harun Yahya


During the first half of my pregnancy with Parker I had no desire to take any pictures.
 

 photo IMG_5282_zpsffec7474.jpg

All my creative energy was poured into baby growing. I remember picking up my camera at the beginning of my second trimester, completely unsure of how to even work it. Feeling lost...

And today- I feel as though all my creative energy was once again poured into growing Parker. I sit here, mentally fatigued, with that lump in my throat bigger than ever... If you are a parent- you know the lump I am referring to... 


Today Parker had a team full of individuals in our home working to get a plan in place to help him learn and help him succeed...While his crew was here I focused entirely in the moment... And the moments by moments really aren't that hard usually. We laughed and played and explored and prodded and pushed ever so slightly. This time around I know more of not only what is going on but why. Our new ABA providers have a more eclectic blend of ABA teaching methods compiling from numerous different resources. And most importanlt, it's created based on Parker's current abilities. I am unlearning the old and learning the new. I am Life's student. We all are- the subjects always change.


And today, after his nap- I grabbed him from his crib and I breathed him in....and out... His soft sweet little bed-headed baby-ness....Grateful...


 photo _MG_3945_zps3f340f63.jpg

 photo _MG_3964_zps430d6fd6.jpg


 photo _MG_3954_zps0fd7ba44.jpg


 photo _MG_3974_zpsd95bbcd0.jpg
I promise you...he will do great things...Our beautiful story will do great things...




This is our new normal...so slowly I'm working to make sure it will start to feel that way...normal...





Whenever Parker needs something- he knows he can come to me... 


 photo _MG_3990_zps2effb83c.jpg


 photo _MG_3991_zpsc667cf87.jpg


 photo _MG_3993_zpsc8df6cec.jpg


 photo _MG_4001_zpsd439d8cd.jpg



When our babies need, we provide...when they hurt, we make it better. It's our job. But now I'm sad because Parker will hurt and I can't fix it...Although ABA is play based- it's also challenging and stressful at times too...and when he cries- I am not able to scoop him up and stop his tears... and I'm not ready for him to know that I can't fix everything in the whole wide world just yet...


I remember being a little girl...dressing up for church on Easter Sunday... Digging through my drawer for a pair of tights that weren't dirty or torn... I would attempt to put them on myself...Not fully pulling them all the way up...loose at the toes and tight at the waist... 4 inches low on the crotch...Good enough for little girl me though...And although I would forget about them being on- it was always in the back of my mind- just how awkward those tights felt...how I just couldn't wait to get them off.

And today I felt like I had those uncomfortable tights on...all day long...not quite able to feel comfortable and at ease...


Sometimes it's hard for Michael and I to relate... Because most men are fix it first...and most women are feel it first... So we take our big marriage pot and pour feel it and fix it in- and simmer til it's ready...I know there's a need for both.


If there was such thing as a Soul Doctor, today I would have gone to one...

I would have told him- mine hurts... help... It hurts as if it is a real body part...it is in my chest- right under the elephant sitting on it...and the Doctor would write me a prescription for time...everyone's dose is different...and I know when I've had enough of the time, my soul will no longer hurt. I know time works...I've taken it before...


Time and watching Greyson jump...that totally heals my soul...


 photo _MG_3909_zps26386f81.jpg


 photo _MG_3910_zps5fe01d4a.jpg


 photo _MG_3912_zpsbb170b9c.jpg

Change often causes more change and after much thoughtful consideration we decided to pull Greyson out of his Autism School Program. Since he started in August he has slowly regressed...Things like he no longer knows his colors or how to count to ten...He no longer speaks to request things and is now back to grunting and pointing...I call him my Unfrozen Caveman (a great vintage SNL skit).

We will revisit the topic of school in 6 months to a year's time... And until then, we will wear out own path in the grass again... At home daily ABA therapy, weekly speech therapy, and typical preschool 1 day a week with a Special Ed shadow... Friday was Grey's last day of school- and I was scared...knowing deep down that we are doing the right thing for Greyson- yet scared that my thinking outside the box will somehow screw him up for Life... 

Sometimes you just have to listen to your gut...I've found the longer I ignore it- the louder it gets... 


If I'm not paying attention, Greyson will go into the fridge and get out the carton of eggs. He will take one and gently hold it in his hands...taking it everywhere... 


 photo _MG_3918_zpsad4694de.jpg




Today when it happened, I couldn't help but smile...I came down the stairs and he was sitting here, watching TV, holding this egg... Often times that's how I feel about my babies...like they are little thin-shelled eggs and I must protective them...But I am realizing they are so much tougher than that...



 photo _MG_3935_zps6c76106c.jpg




Oh Monday...you were an extra doozie... But we did it...all of us- we made it until the end... 


Today I google'd quotes on Change...and this one made me feel and helped me through the day...


You can change or stay the same, there are no rules to this thing. We can make the best or the worst of it. I hope you make the best of it. And I hope you see things that startle you. I hope you feel things you never felt before. I hope you meet people with a different point of view. I hope you live a life you are proud of. If you find that you're not, I hope you have the courage to start all over again. 


                                                                          The Curious Case of Benjamin Button


3 comments:

  1. Oh sweet Mama! Another beautiful post. Thank you for sharing. I know you are doing right by your boys because nobody wants better for them than you. Happiness to you and those gorgeous boys <3 Jennifer

    ReplyDelete
  2. Your boys are beautiful. When you wrote about Greyson searching for just one egg to hold, I was captivated. How gentle a boy he must be (inside and out) to not crack that egg.

    My 6 yo is named Grayson and he was just diagnosed w SPD. We are on our own journey, different from yours, but similar just the same. How much I want to run away, back in time, or away from time into a meadow of soccer balls and Easter bunnies. When I read your words, I feel stronger like mabe I can meet change head on, like of course we can all do this.

    Sending love from VA.

    ReplyDelete
  3. Chrissy,
    These choices we have to make for our kids are SO hard. But I have spent many years working with children and their families and what I do know for sure is that the children who do the best in the end are the ones that have the parents fighting for them and doing what their gut tells them is the right thing to do time after time. You are on the right path and doing an amazing job for your boys:)
    Jen

    ReplyDelete